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No AccessUrology PracticeHealth Policy1 May 2022

Identifying Patient-Centered Research Priorities in Overactive Bladder by Crowdsourcing and Targeted Recruitment

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Introduction:

Patient perspectives in quality-of-life improvement are critical to measuring treatment outcomes. We aimed to identify patient priorities for overactive bladder (OAB) research.

Methods:

Participants were recruited utilizing the Amazon Mechanical Turk database, an online marketplace where individuals receive payment for completing tasks. Those who scored 4 or higher on the OAB-V3, a simple 3-question screening survey, were requested to complete an “OAB-q and Prioritization Survey,” which identified preferences for future OAB research priorities, demographic and clinical data, and symptom severity via the OAB-q. Participants must have correctly answered an attention-confirming question to have their responses included in the final analysis.

Results:

Of 555 responders, 352 screened positive on the OAB-V3 and 232 completed the followup survey and met study criteria. The top 3 research preferences were: discovering the etiology of OAB (31%); individualized treatment based on age, race, gender and comorbidities (19%); and identifying the fastest OAB treatments (15%). Participants who selected etiology of OAB in the top 3 research priorities (56%) were older (38.7±2.1 vs 33.9±1.5 years, p=0.05) and had significantly lower mean health-related quality of life scores than those who did not (25.1±2.5 vs 35.5±3.9, p=0.02).

Conclusions:

Using Amazon Mechanical Turk, we present the first report of OAB research priorities identified by patients experiencing OAB symptoms. Crowdsourcing offers a timely and cost-effective manner to learn directly from people with OAB symptoms. Few participants sought treatment for OAB despite having bothersome symptoms.

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Submitted November 12, 2021.

Recusal: Dr. Malik is a member of the Urology Practice® Editorial Committee and was recused from the editorial and peer review processes.

Support: Funding was provided by the University of Maryland Baltimore Department of Surgery.

Conflict of Interest: There are no conflicts of interest to disclose.

Ethics Statement: This study was deemed exempt from Institutional Review Board approval.

Data Availability: The data that support the findings of this study are available from the corresponding author upon reasonable request. I give permission to reproduce material from other sources.

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