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No AccessJournal of UrologyAdult Urology1 May 2014

Satisfaction with Information Used to Choose Prostate Cancer Treatment

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    Purpose:

    After being diagnosed with prostate cancer men must assimilate information regarding the cancer. Satisfaction with information reflects the evaluation of information sources used before treatment to select a therapy. We describe the use and helpfulness of several information sources available to prostate cancer survivors. We also identified factors associated with satisfaction with information.

    Materials and Methods:

    A total of 1,204 men with newly diagnosed prostate cancer were enrolled in the prospective, multicenter Prostate Cancer Outcomes and Satisfaction with Therapy Quality Assessment study. The validated satisfaction with information domain of the Service Satisfaction Scale-Cancer was administered to subjects 2 months after treatment. The relationship between several factors, such as demographics, socioeconomic factors, cancer severity and types of information sources, and satisfaction with information were evaluated using multiple regression.

    Results:

    Sources of information endorsed by subjects varied by race, education and study site. The most helpful sources were treatment description by the treating physician (33.1%), Internet sites (18.9%) and books (18.1%). In multiple variable models patient age (p = 0.005) and information provided by the physician regarding outcomes in their patients (p = 0.01) were independently associated with patient satisfaction with the information provided.

    Conclusions:

    Various information sources were used and endorsed as helpful by subjects, although results for physician patients was the only source independently associated with satisfaction with information. Providing patients with information about possible or expected courses of care and outcomes may improve satisfaction.

    References

    • 1 : The role of expectations in patient satisfaction with medical care. J Health Care Market1987; 7: 16. Google Scholar
    • 2 : Perceived informational needs of breast cancer patients receiving radiation therapy after excisional biopsy and axillary lymph node dissection. Cancer Nurs1993; 16: 449. Google Scholar
    • 3 : Effects of preparatory patient education for radiation oncology patients. Cancer1985; 56: 1056. Google Scholar
    • 4 : Information needs of cancer patients in West Scotland: cross-sectional survey of patients’ views. BMJ1996; 313: 724. Google Scholar
    • 5 : Getting it taped: the “bad news” consultation with cancer patients. Br J Hops Med1989; 41: 330. Google Scholar
    • 6 : The use of recorded interviews to enhance physician-patient communication. J Cancer Educ1991; 6: 99. Google Scholar
    • 7 : Cancer and communication: information-giving in an oncology clinic. Br Med J Clin Res Ed1998; 282: 1449. Google Scholar
    • 8 : The information needs of women with newly diagnosed breast cancer. J Adv Nurs1995; 22: 134. Google Scholar
    • 9 : Informational and psychosocial needs of women choosing conservative surgery/primary radiation for early stage breast cancer. Cancer Nurs1990; 13: 90. Google Scholar
    • 10 : Information needs and sources of information among cancer patients: a systematic review of research (1980–2003). Patient Educ Couns2005; 57: 250. Google Scholar
    • 11 : Cancer Statistics, 2006. CA Cancer J Clin2006; 56: 106. Google Scholar
    • 12 : Five-year outcomes after prostatectomy or radiotherapy for prostate cancer: the Prostate Cancer Outcomes Study. J Natl Cancer Inst2004; 96: 1358. Google Scholar
    • 13 : Patient education materials about the treatment of early-stage prostate cancer: a critical review. Ann Intern Med2004; 140: 721. Google Scholar
    • 14 : Quality of life and satisfaction with outcomes among prostate cancer survivors. N Engl J Med2008; 358: 1250. Google Scholar
    • 15 : Evaluation of the SCA instrument for measuring patient satisfaction with cancer care administered via paper or via the Internet. Ann Oncol2011; 22: 723. Google Scholar
    • 16 : Development and validation of a novel instrument to measure patient satisfaction in multiple dimensions of Urological cancer care quality. J Urol2003; 169: 11. Google Scholar
    • 17 : Patients’ perceptions of hospital care. Hospitals1972; 46: 70. Google Scholar
    • 18 : Patient satisfaction in primary health care: A literature review and analysis. Eval Progr Plann1983; 6: 185. Google Scholar
    • 19 : Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease: implications for cancer screening and management. Cancer1995; 76: 167. Google Scholar
    • 20 : Interacting effects of information and coping style in adapting to gynaecologic stress. J Pers Soc Pschol1983; 41: 223. Google Scholar
    • 21 : Racial disparities in health information access: resilience of the Digital Divide. J Med Syst2006; 30: 241. Google Scholar
    • 22 : Information needs in patients with cancer: results from a large study in UK cancer centres. Br J Cancer2001; 84: 48. Google Scholar
    • 23 : Information needs of men with prostate cancer and their partners. Ned Tijdschr Geneeskd2000; 144: 431. Google Scholar
    • 24 : Information needs and prostate cancer: the development of a systematic means of identification. BJU Int2004; 94: 63. Google Scholar
    • 25 : Information needs and information seeking behavior of men with prostate cancer and their partners: a review of the literature. Cancer Nurs2002; 25: 35. Google Scholar
    • 26 : Men with prostate cancer: influence of psychological factors on informational needs and decision-making. J Psychosom Res2000; 49: 13. Google Scholar
    • 27 : Prostate cancer: an intimate view from patients and wives. Urol Nurs1996; 16: 37. Google Scholar
    • 28 : Results of a survey of Canadian men with prostate cancer. Can J Urol1997; 4: 359. Google Scholar
    • 29 : Cross sectional survey of patients’ satisfaction with information about cancer. BMJ1999; 319: 1247. Google Scholar
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